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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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Hello all Having been shut out of the NRAS forum for the last week, I have been on some of the American forums and it seems that there is a shortage of injectable methotrexate in the US. I am supposed to be starting this drug soon so am quite concerned. Does anyone else have any knowledge of a shortage? Best wishes from Naomi.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 288 Location: LUTON
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Hi Naomi, i picked mine up from hosptial as usual last week, i haven't heard anything,  I am sure alls well this side of the water, if not we may hear it here first lol. I have been injecting for well over a year now and find things are going ok for me. I hope the MTX jabs suit you also, best of luck. Anne-m xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 88 Location: Aylesford, Kent
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Hello Naomi Like Anne-M I have been on and off methotrexate injections since 2005 and I have had no knowledge of there being a problem with getting them. I pick mine up from the Hospital Pharmacy. I hope the injections start to help you. Love Belinda x Treat others how you wish to be treated!!
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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I've just started injecting MTX, I had 8 weeks supply delivered in one go. Strange that is because from what I've been told GP's can only let you have 4 weeks supply and thats after they've checked that you have had your monthly blood test done. Also when it's delivered to your door its free!!!!
I've worked out that I will be away for my delivery end of December, I've rung up the customer care line and they are just going to bring my delivery forward a few weeks. If there was a shortage I am sure that they would not deliver my supply before it was due.
It's really easy to inject it yourself, hope you get your delivery soon and it starts to do it's magic.
Take Care
Paula xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 288 Location: LUTON
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Hi Paula, i normally get 6wks at a time, And like you mine is free, which i thought was strange as i paid for the mtx tabs, i do buy a yearly prepayment so it makes little difference, it maybe because you can not obtain from a normal pharmacy. Take care. Anne-m xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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I've got the pre-payment card, I buy a three month one and with careful planning I get four months supply of drugs with it, so I only have to buy three a year, works out cheaper than buying a yearly one.
Last time I picked up my drugs was told that my doctors is now doing repeat prescriptions every two months, so I had two months supply in one go. Because my MTX is delivered I only have four items to collect. I did asked out of curiosity would I of had to pay just for four items because everything was doubled but no I would of had to of paid for 8 items. Would of been interesting if there was two months supply of MTX because from what I've been told they can only give you one months supply at once.
I don't mind having to buy the pre-payment card really, I think I get good value for my money, but I do get annoyed when the drug addicts come in for their 'free' dose of methadone, happens nearly everytime I'm there, they go in a little room with the pharmacist for a few minutes. They have chosen to take drugs, I did not chose to get RA.
Paula x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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I think I have come across this before on the US sites, they said they have gone to collect meds and they dont have them, and not sure when they will get them in. I cant remember which but I think it was hydroxychloroquine, they use the plaquenil name there. I think it causes scaremongering that people wont get their meds, and then they get scared, so it goes around, certainly nothing ever came of it here anyway BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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Glad to hear that the shortage is not in the UK. I feel desperate to go on the injectable drug. I am so nauseous and cannot face most food. Yesterday I could only eat 2 boiled eggs and a Fab ice lolly. Don't know why the latter seemed palatable but it did. I am just glad when I am able to eat anything. Normally I am not at all fussy! I will look forward to starting the new method. I have a prepaid prescription and am saving money this way. However I think RA treatment should be free. It's not like we have any real choice about whether to take it or not. Best wishes to everyone from Naomi.
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Rank: Advanced Member
Groups: Registered
Joined: 2/7/2011 Posts: 66 Location: London
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I have a feeling that most of the drugs we use are manufactured in Europe (here or on the mainland) so the supply chain would be very different from US. I would try not to worry, you have enough on your plate with making the change over in the first place. Hope goes smoothly. Polly
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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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I've just had a telephone call to say I am having a delivery of 8 weeks worth on 3rd November....so obviously all is fine. Naomi X
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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I get so confused by all this (I know, it doesn't take much to confuse me!) My prescription is signed by my consultant, but only after he has seen my monthly blood test results. He never prescribes for more than 4 weeks in case there is a problem and I have to be taken off it. It's a puzzle that we are treated dfferently!
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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I agree Jean, it is strange how policies differ. I understand the 'norm' for methotrexate injections is a four week supply so I don't know how some manage to get 8 weeks in one go! Not at all sure what they base the decision on I felt pretty bad about 'wasting' supplies of Enbrel when I had to stop it suddenly a few weeks ago; I had just taken delivery of the next batch of eight and only used one  They can't be re-assigned yet no-one else seemed to be bothered about the financial implications and we're talking hundreds of pounds! I hate waste Lyn x
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